Thursday, July 9, 2009

{News About Your Dad!}

I feel compelled to let you know the state of your father’s health.

Things have been stable for a while but it is almost a year since your Dad has signed his DNR. As you all know he does have a nurse come in weekly to check his heart, blood pressure, weight gain, blood sugars, any discomfort or abnormalities.

We also hired a CNA (Certified Nursing Assistant) Calvin to help daily. He comes in about noon and makes sure your dad eats and takes his med. He also keeps the house clean and makes sure your father’s needs are met ie: clean bedroom, change of sheet, bathroom cleaned etc. Because Keary’s eyesight is getting weaker I fix his syringes once a week for his daily insulin intake. He now has a pre-measured insulin syringes for his overage. And of course he has Duke as a companion.

We had for a while some home teachers that came by often, but since Calvin comes in we don’t see much of them anymore. He also had sacrament come in on Sundays but that again has fallen thru the cracks. I did address it with one of the counselors about 2 Sundays ago and someone showed up; but not this last week. His home teacher used to take him to the Temple once a month but it has been a while since that has happened and I am not sure if it is because your dad cancels or what.

So now for the updates:
Within the last 3 months your dad has lost about 25lbs, he has sporadic heart attacks, and of course some eyesight loss. A couple of Sundays ago your dad had a heart attack he felt and I wanted to take him to the Hospital and he refused. The next Tuesday I addressed this with his nurse. The nurse stated that the palliative care your father is receiving is to make him comfortable and pain free and live a reasonable comfortable life. There will be no intervention or aggressive health care unless your dad and I decide that is what he wants. (We discussed this and he doesn’t)

He has also developed a thyroid problem that makes him sleep a lot because he is always fatigued; he is on medication for that. Tuesday the nurse gave him a prescription for Ritalin to boost his energy. He went in yesterday for blood tests to detrmine the levels of his thyroid and check his heart enzymes. Today he went in to see his Dr.

As per the conversation I had with your Dad the following occurred:

1. His heart is slowly being damaged and the only alternative is to have a heart by-pass but he would not survive the surgery due to the fact that his body would not survive the anesthesia, his heart would not improve by much.

2. The blood tests also indicated that his liver enzymes are not normal and have not been since 2007 but now they are going to do a sonogram to determine the extent of the damage to his liver. The Dr told your Dad that the normal thing for him would be to be hospitalized for a battery of tests to minimize the damage to the liver; Dad told her he was not going to the hospital. The Dr agreed and she scheduled the sonogram as an out-patient for Aug 12.

3. He is receiving many types of medication to cover many his conditions; however the liver condition cannot be medicated because this medication would make his low blood pressure even lower putting more stress on the heart.

So… as per my conversation with your dad he believes not being hospitalized and having all these procedures will prolong his life. He states he has prayed about it and feels it is the right thing for him to do. He does have a DNR in place and I will do as he asks.

I just wanted to update ya’ll with what is happening. I know that you girls read these blogs but am not sure of your brothers, we don’t seem to hear from them much. So please pass this on to Alex and Andrew I am sure they would want to know this also.

Love you all!

3 comments:

Anonymous said...

This makes my heart break, I know it is what dad wants and that isn't what makes my heart break... My heart breaks because I hate how much dad is suffering and I am sad that none of us are there to help. We love you guys so much and in our prayers. I love you MOM AND DAD SO MUCH!

Love Calixta

Anonymous said...

ditto to calixta. wish we could be there to help...even if it's just to help him smile;) we love you lots and miss you more!

Alex said...

I read the blogs. i just don't comment much. sorry i can't be there as much as i would like. i'll see if I can work out a way where I could go and see him soon. love you guys.